Thursday, December 20, 2012

Gluten Free Salisbury Steak

I have been wanting salisbury steak for some reason lately.  So I looked it up and sure enough...GLUTEN was present in the recipe.  So I decided to take the recipe, modify it, and make my own fabulous salisbury steak!  It was delicious!!  Here is the recipe for those interested.

First I have to take you to a separate recipe as a base.  Us gluten free folks cannot use condensed cream of whatever soups.  So a wonderful friend of mine shared this recipe, click here,  with me to make cream of chicken base soup (S.O.S).  ( I use this for any recipe that calls for any kind of cream of soup)

So now here is my recipe for GF Salisbury Steak

"Condensed" French onion soup
1 can equivalent of S.O.S
1 packet Simply Organic Gluten free brown gravy packet
1 tlbs brown sugar
2/3 cup Gluten free beef broth
1 tsp worcestershire sauce
1 tsp salt
1 tsp gluten free soy sauce


2 lbs grass fed ground beef
1/2 dry gluten free bread crumbs
1 egg ( I use egg replacer, because we are also egg free)
1/4 tsp salt
1/8 tsp pepper
1 tbls tapioca flour
1/3 cup ketchup
1/2 cup water
1 tbls worcestershire sauce
1 1/2 tsp mustard


Directions

1. In a large bowl, misx together 1/3 cup of the french onion soup with ground beef, bread crumbs, egg reaplacer, salt, and black pepper.  Shape into oval patties.

2. In a large skillet over medium-high heat, brown both sides of patties.  Pour off excess fat.  (With grass fed beef, we had no excess fat in the pan at all)

3. In a small bowl, blend tapioca flour and remaining soup until smooth.  Mix in Ketchup, water, worcestershire sauce and mustard.  Place all patties in a greased 9X13 baking pan and pour this sauce of it.  Bake at 350 degrees until hot and bubbly. I then turned by oven up to 425 and baked for an additional 10 minutes to add some caramelizing edges.


This was awesome!!  I didn't have any potatoes on hand, but I reccomend making mashed potatoes and using the gravy for the mashed potatoes.  I would also suggest adding mushrooms to the sauce.  That just sounds very yummy to me!

I hope you enjoy!  We certainly did.  My two very picky children ages 2 and 1 loved it! And we can barely get them to eat meat of any kind!




Monday, November 12, 2012

Mommyhood...

In a spiritual sense my identity is found in Christ. Christ saved me and when I accepted the Truth of the Gospel my identity was transformed.  2 Corinthians 5:17 Therefore, if anyone is in Christ, the new creation has come.  The old has gone, the new is here!  I am incredibly thankful and amazed at how God works in our lives. However, being a woman;  my Identity is also found in my home and my family.  Similar to how a man finds his self or Identity in his career and how he provides for the Family.     My career is my mommyhood.  I take pleasure in my calling to be a faithful, submissive, and respectful wife; and a loving, kind, compassionate mommy. This being said, I'm a little depressed or sad today.  My family is "off balance" right now.  May it be from a year of chaos with my son?  An emotional rollar coaster regarding a special "extended" family member that started in May? (of which is confidential so I cannot share it with you all) Many sleepless nights?  My little girl growing up and not wanting to give up some "baby items?"  The time-change throwing off the family's sleep schedule that was already not good? Or am I just burnt out and have I lost my sense of intuition to figure out what is going on with my family? Whatever the case may be, I'm struggling today with it.  I want to fix it.  God please help our family get back on track.  May we look to you for all our needs and desires.  Something is off balance, please give us the direction and wisdom to get back on track.  Thank you for saving me and thank you for the cross, In Jesus Name...Amen.





Psalm 25

Of David.

1 In you, Lord my God,
    I put my trust.
2 I trust in you;
    do not let me be put to shame,
    nor let my enemies triumph over me.
3 No one who hopes in you
    will ever be put to shame,
but shame will come on those
    who are treacherous without cause.
4 Show me your ways, Lord,
    teach me your paths.
5 Guide me in your truth and teach me,
    for you are God my Savior,
    and my hope is in you all day long.
6 Remember, Lord, your great mercy and love,
    for they are from of old.
7 Do not remember the sins of my youth
    and my rebellious ways;
according to your love remember me,
    for you, Lord, are good.
8 Good and upright is the Lord;
    therefore he instructs sinners in his ways.
9 He guides the humble in what is right
    and teaches them his way.
10 All the ways of the Lord are loving and faithful
    toward those who keep the demands of his covenant.
11 For the sake of your name, Lord,
    forgive my iniquity, though it is great.
12 Who, then, are those who fear the Lord?
    He will instruct them in the ways they should choose.
13 They will spend their days in prosperity,
    and their descendants will inherit the land.
14 The Lord confides in those who fear him;
    he makes his covenant known to them.
15 My eyes are ever on the Lord,
    for only he will release my feet from the snare.
16 Turn to me and be gracious to me,
    for I am lonely and afflicted.
17 Relieve the troubles of my heart
    and free me from my anguish.
18 Look on my affliction and my distress
    and take away all my sins.
19 See how numerous are my enemies
    and how fiercely they hate me!
20 Guard my life and rescue me;
    do not let me be put to shame,
    for I take refuge in you.
21 May integrity and uprightness protect me,
    because my hope, Lord, is in you.
22 Deliver Israel, O God,
    from all their troubles!

Thursday, November 8, 2012

Why am I ashamed to be called an American?


“I pledge allegiance to the flag of the United States of America and to the Republic for which it stands, one nation Under God, indivisible, with Liberty and Justice for all."
                                                 ~ The United States Pledge of Allegiance


The United States of America was founded upon christian principles of which I fully stand behind.  This country was and  is one nation UNDER GOD.  No laws or presidents can change that fact. For  years now, people have tried to remove God from their lives and this country. President Barrack Obama is just one of those people.  He is supported by 50% of our American population and this saddens me.  It doesn't matter how many votes this man gets or how many of us support his dream for America.  The bottom line lies in the Truth. No matter how much of the "majority" of mankind votes on changing something that is "bad", no matter how many people want to turn the bad thing into a "socially good" thing, they can't truly change what is "Right and Wrong;" that was "set in stone" long ago by our Creator, God Himself.  The bible clearly states the positions of these matters. 
Abortion is by definition, "The deliberate termination of a human pregnancy."  Human pregnancy is defined as  the carrying of one or more offspring, known as a fetus or embryo, inside the womb of a female.  A fetus is defined as an unborn human baby.  So by definition alone; abortion is deliberately terminating the life of a human baby (regardless of why or how the pregnancy came to be).  So then I ask, what is murder?  Murder is the unlawful taking of someone's else's life.  The Christian Apologetics& Research Ministry wrote a great article defending the unborn.  I invite you to go read it, click here
Genesis 9:6 states "Whoever sheds man’s blood, By man his blood shall be shed. My favorite verse which portrays and confirms that fact the unborn babies are living human beings is Exodus 21:22-23  “If men struggle with each other and strike a woman with child so that she gives birth prematurely, yet there is no injury, he shall surely be fined as the woman’s husband may demand of him, and he shall pay as the judges decide. “But if there is any further injury, then you shall appoint as a penalty life for life.  Since abortion is murdering a innocent life, abortion is morally wrong.  I will not support, vote, or stand behind a president that willfully condones the mass murdering of these innocent lives.
This brings me to my second point, what is marriage in God's eyes?  In Matthew 19:4-5, Jesus responds to the Pharisees asking Him about divorce.  Not only did Jesus answer the Pharisees' question, he defined marriage as being between one man and one woman.   Matthew 19:1-6 reads,  "When Jesus had finished these words, He departed from Galilee and came into the region of Judea beyond the Jordan; and large crowds followed Him, and He healed them there.  Some Pharisees came to Jesus, testing Him and asking, “Is it lawful for a man to divorce his wife for any reason at all?”
And He answered and said, “Have you not read that He who created them from the beginning MADE THEM MALE AND FEMALE, And said, ‘FOR THIS REASON A MAN SHALL LEAVE HIS FATHER AND MOTHER AND BE JOINED TO HIS WIFE, AND THE TWO SHALL BECOME ONE FLESH’? “So they are no longer two, but one flesh. What therefore God has joined together, let no man separate.”  One may ask, "who gives Jesus the authority to define how God sees Marriage?  Well, my friend, I'm glad you asked. Jesus is God's Son in that He was conceived in Mary by the Holy Spirit. Luke 1:35 declares, “The angel answered, 'The Holy Spirit will come upon you, and the power of the Most High will overshadow you. So the holy one to be born will be called the Son of God.’”  Hebrews 1:3 -- The Son is the radiance of God's glory and the exact representation of his being, sustaining all things by his powerful Word.  After He had provided purification for sins, He sat down at the right hand of the Majesty in heaven.  Colossians 1:15 -- He [Jesus]is the image of the invisible God, the firstborn over all creation.  

Hebrews 13:4-8
" Marriage should be honored by all, and the marriage bed kept pure, for God will judge the adulterer and all the sexually immoral. 5 Keep your lives free from the love of money and be content with what you have, because God has said,
“Never will I leave you; never will I forsake you.”  So we say with confidence, “The Lord is my helper; I will not be afraid.  What can mere mortals do to me?” Remember your leaders, who spoke the word of God to you. Consider the outcome of their way of life and imitate their faith. Jesus Christ is the same yesterday and today and forever."

It simply does not matter what my opinion is or what your opinion is.  Frankly it doesn't matter what President Barrack Obama's opinion is.   God's word is truth no matter who believes it or who does not.   As an evangelical Christian, I regard the Bible as the authoritative Word of God and I will not support any persons going against the true testimony of Scripture.  This being said, I am ashamed that President Obama is representing our country in this fashion; therefore; it is true that I am ashamed of what values America's vote represented in this election.

President George W. Bush was asked the question, "What is the greatest threat to America?"  The President replied "The deterioration of the Family." (1)








Friday, October 19, 2012

Family Date Night






We decided it was time to take our kiddos out for Ice cream and sorbet last night.  Being it was gluten free frozen yogurt and sorbet, we couldn't resist! 

Update on Little Man and the rest of us :)

This past year with our Little Man has been crazy and unpredictable to say the least!  But we have come very far as to having answers!  I continue to praise the Lord for giving me my "mommy instinct" and insisting that something was indeed not right with my Little Man.  From as early as 3 weeks old, I told the doctors that something wasn't right.  "It's just colic"  "It's normal baby stuff"  "His breathing is just a variation of normal"  I would insist, "NO! something is wrong with my baby and I'm not stopping until we have answers."  11 months,  10 doctors including 6 current specialists, 5 trips to Milwaukee, 2 trips to Madison, countless trips to Marshfield, new furniture, new flooring, no pets, lots of different meds and many many prayers later, we have answers and great progress for our Little Man!!!   We did not give up; we did not take no for an answer; and I am incredibly thankful for that!  The Lord has been teaching us so much through this process.  Throughout most of this process, I was doing it alone-apart from God- not necessarily intentionally away from Him but I was.  I was worrying, losing tons of sleep (still do), becoming very angry, impatient, and frankly fed up with everything!  But this is the part where God's grace and glory shine!!!  One day, about 3 weeks ago, I went on a walk with my kiddos, yes a simple walk that changed the direction of my life!  I poured my heart out to our Lord, hit my knees, and met God face to face.  (I never understand what that meant until I experienced it myself.)  I confessed my pride, my anger, my disbelief, and my discontentment to our Holy God.  I asked God to change my heart, give me a new perspective on life, and mold me into the wife, mother, and woman he intended me to be!  I cannot express enough how freeing it truly is to give up my pride!  In the midst of my bondage to Satan, I didn't realize how much it controlled my being!!  Thank you God for saving me! Thank you God for changing my heart! Thank you for sending Jesus the Christ to forgive me of my sins! Thank you God my humility! Thank you God for your never changing Love and Grace!!!  Thank you God for my Life, my family, my babies, and even Little Man's struggles!  Thank you for providing doctors to care for my Little Man and answers to our Little Man's pain!   God is good all the time, in all circumstances, and in every "problem" we face!  God never leaves us!

1 Thessalonians 5: 16-18 
Rejoice always,  pray without ceasing give thanks in all circumstances; for this is the will of God in Christ Jesus for you.

Now on to Little Man's progress...

He has been doing very well with the cats gone, new furniture, and no carpet in the first floor.  However, when the cold weather hit, we had to turn on our furnace.  Well, not so good for little man.  His breathing labored, his eyes puffed up, more doctor visits, and on and on it went... His allergy doctor decided it was time to see a lung doctor.  We were sent to Madison's children's hospital (which is by far the coolest children's hospital I have seen to date-I will take pictures next time)  to see a pulmonologist aka the lung doctor.  That place was amazing on how they handled my baby.  We saw a minimum of 6 medical staff; they talked with us, listened to our story and concerns, examined our baby, educated us on asthma, and gave us more medication to manage his asthma.  My son failed the written asthma test by a lot! He scored 30 and the minimum is 80.  He was diagnosed with moderate to severe asthma.  We were sent home with three new meds and a new spacer for his inhaler.  Praying this would help him improve, we came home. A few trips to the peds while he was sick, oral steroids, and homemade hepa filters followed.  Fast forward to today... Little man is doing very well on the new meds.  With his new asthma action plan; his breathing is less labored, he takes longer naps (still working on getting him to sleep through the night)  coughs far less-almost not at all!  We are also considering taking him off his breathing monitor because he is doing so well.  Please pray for him and getting the common cold.  He goes to code yellow in his action plan anytime he gets sick.  This means higher doses of meds and meds every 4 hours.  Please continue to pray for my Little Man and his asthma.  God is so good to my Little Man!

As far as the rest of his stuff goes...

Little Man's gluten free/egg free diet  is going very well. It's actually going very well for all of us.  Little Man doesn't hurt as much, doesn't get hives or throw up unless contaminated, plays well by himself, and loves to eat his food.  Little Peanut is also responding positively to the diet change. It took some time for her to get use to the new foods, but she adapted well.  She can now tolerate milk products since the gluten has been removed.  The doctor suspects she probably has gluten sensitivity as well.   SuperDaddy also is suspected to have the gluten problem.  He is almost a completely different person to talk with since he can think so clearly now (unless he is contaminated by gluten)  I have to stay gluten free/egg free since I am nursing Little Man yet.  Praise the Lord, Little Man is still getting my breastmilk, which is the best for him.  The breastmilk aids in healing his stomach from the gluten damage.  

His Port Wine Stain is still being treated in Milwaukee, WI.  He had his most recent surgery at the beginning of October.  The doctor says it is responding very well.  We do not know how many more treatments he needs.  His next surgery is December 7.  
  
His eye is still being monitored carefully every three months by his eye doctor.  Still no signs of glaucoma.   

Please continue to keep Little Man in your prayers.  Praise the Lord with us for these answers and Little Man responding well to the meds and treatments!  

Little Peanut is doing well.  I started working with her again on some "school" stuff.  We are working through the alphabet in a different order than normal.  This week we are learning the letter "L".  She is enjoying "preschool" a lot.  I enjoy teaching her.  I continue to Praise the Lord for helping me prioritize my time and share this time with my Peanut.  She is a typical 2.5 yr old pushing boundaries. SuperDaddy and I are looking to God for ways to show Peanut the right direction through discipline. We thank you for your prayers.


Here are Little Man's 11 month photos and some cute pics of Little Peanut...









 

Thursday, September 13, 2012

Promised Pictures of Little Man!

 My Little Man is growing up so fast!  Ten months old!!!!





 Here are some cute pics of my Little Peanut as well!  She is so grown up lately.  Talking nonstop.  Doing "big girl" things and she loves being a mommy with her baby dolls!






Thursday, September 6, 2012

Gluten...What is it anyway?

For those of you who are wondering what this whole hoopla is about my family going gluten free,  Here is a post to explain it all. We have been doing tons of research and reading on celiac disease and the gluten free diet but to make it easier I will use wikipedia to explain.

The wikipedia definition is as follows for gluten...

Gluten (from Latin gluten, "glue") is a protein composite found in foods processed from wheat and related grain species, including barley and rye. It gives elasticity to dough, helping it to rise and to keep its shape, and often gives the final product a chewy texture. Gluten may also be found in some cosmetics or dermatological preparations.


So what is Celiac Disease?  I'm glad you asked...According to wikipedia,  It is an autoimmune disorder of the small intestine that occurs in genetically predisposed people of all ages from middle infancy onward. The treatment is a gluten free diet. There is no cure. Because this is a genetically predisposed disorder, the rest of my family was tested for it as well.  The theory is, someone else in the family has it.  So we will get the results back sometime next week.  Please keep us in your prayers as we wait.  Regardless if another member of our family has it or not, we are all staying gluten free at this point.

In a nutshell, we can no longer eat wheat, rye, barely, and most oats. Anything that comes in contact with any said products are also a no go. And most processed foods have gluten added in some variation or form.  We are keeping our home gluten free for the safety of our son. My son has celiac and this is changing our world.  Never did I ever imagine a baby could so drastically change ones life.  Little Man has not been an easy baby to say the least.  I have lost many many hours of sleep because he cries inconsolably, he thrashes his body around the bed, has difficulty breathing, and occasionally has stopped breathing.  Thankfully his asthma medication helps with his breathing. My world is so different since Little Man has been born.  Not only was his pregnancy hard, his infancy has been as well.  I'm grieving for my little man, all the pain he has been in could have been different.  If we only knew so many months ago what was causing all his "colicky" behavior.  But in all of this, I trust the Lord.  We pray that this new finding of Celiac disease will help our little Man feel better and get the much needed sleep he needs as well as the rest of us.  

Please continue to pray for our Little Man.  

  • Please pray that this new diet will help him feel better.    
  • He is also allergic to wheat and egg.  (thus making the gluten free diet harder) please pray that we can diligently learn what all this means and keep him from eating egg as well.
  • Please pray for his asthma. His new medication seems to be helping but last night he had a few more episodes and we had to give him his rescue inhaler.
  • Please continue to pray for the risk of glacoma.  He still is clean and doesn't have it.  We still go to the eye clinic every 3 months.
  • Please continue to pray for his laser treatments for his port wine stain.  His next scheduled treatment is October 5. He does need to be sedated and this is very hard on him.
  • Please pray for wisdom and encouragement for me and my husband throughout this journey with our son.  
  • Please continue to praise the Lord for our wonderful Little Man.  He is a joy and delight when he isn't in pain.  
  •  
When he isn't in pain, he loves to laugh, crawl, eat, and have fun.  Superdaddy is one of his favorite people and he beams with excitement when Daddy walks in from work.  He loves his big sister (little peanut)  He still is a little small to wrestle, but they both can't wait for the day when they can!  I love my little man, he truly is a blessing from the Lord!!!

Pictures coming soon....

 

Thursday, August 30, 2012

Newest Update on Little Man...

Little Man seems to be doing much better with his new asthma medication.  He still needs his albuterol inhaler once in a while but less often than before.  I never imagined my little baby to be on so much medicine!  But sometimes, as in this case, his meds are very needed.  Praising the Lord for his goodness!!!

We finally met with his tummy dr (GI specialist) and he ran some blood tests for certain things.  I was anxiously waiting the 10 days to hear the results.  Praying for good news because it seems everytime he sees a dr, more things are found and diagnosed.  I don't think I've cried so much in the life than I have since Little Man has been born.  The nurse called me and told me that his blood tests show that he is allergic to wheat and eggs.  And he also has elevated antibodies that indicate celiac disease (gluten intolerance).They want to test him further to determine to confirm or deny their findings.  I cried hard after hanging up the phone with the nurse. It's so frustrating.  I don't understand what all the testing is.  I would prefer to just change his diet and see if he improves.  He has a test tomorrow morning and the next ones will be scheduled after that if SuperDaddy and I go through with all the testing.  Please keep Little Man in your prayers. How much more can be wrong with my baby.  Please pray that I stay focused on the Lord and continue to praise him in all circumstances!

Thanks for your prayers and support!


Thursday, August 16, 2012

Little Man's 9 month update...




 Last month we found out Little Man is allergic to cats and dogs.  We are so thankful for an answer to his problems; but it doesn't stop there.  Things started to improve greatly, just after a week of the cats being gone and most of the cleaning done, he started eating solid foods.  He has been doing wonderfully with food, and it's so relaxing knowing he can eat more than just breastmilk!  And this Mommy is proud to say he has gained 1 whole pound and .25 inches since he started eating.  Before this, he didn't grow for 2 months at all.  So we are exhausted from the cleaning, replacing carpet and furniture and trying to understand all of this.  Well, he still has been having episodes, which keeps him awake at night, and continued problems with the cat allergy.  We saw the allergy doctor again yesterday and he diagnosed him with severe asthma and put him on more steroids.  It's so hard to hear this.  I cried in the doctor's office when he said we need to give my little 9 month old baby steroids every day.  I'm in shock to say the least.  I told a friend last night "I'm struggling so much with this news. The side-effects of the drug can cause the same symptoms it is suppose to treat. I cried when the dr told me. I'm exhuasted. I'm tired of taking my baby to drs. I'm tired of bad news. I'm tired of being tired. Apparently the asthma is what causes him to not sleep at night. I desire sleep and some normalacy. please pray for us."  This is so true. Please if you think of us, please pray for my baby and our family.  SuperDaddy and I are exhuasted, we are beyond tired and energy drinks (they no longer help us).  We need our baby to have a good night's sleep and we are praying this medication will give us that.  If you have any experience with infant asthma and treatment, please message me.  I do not feel comfortable with all of this, but I feel like I don't have many options.  So please keep us in your prayers. But praise the Lord that my little Man can finally eat solid foods and start growing again!!!

As with his allergies, since he tested positive for cat and dog so young; he will need to be tested every 3-4 months for new allergies.  He is more suseptable to all sorts of allergies because of his current allergies and his young age.  You aren't suppose to be positive for allergies until at least a toddler.  So being an infant and having allergies is a big deal. That's what they told me anyway. 

As for his port wine stain, he had his first sedated treatment on August 3.  It went very well and the doctor thinks we should only need a couple more treatments!!  That will be nice not going to Milwaukee every 2 months.

He had another eye check up and that went great.  He still has good eye pressure and healthy nerves. He still has a 50% chance of developing gluocoma. Please continue to pray that he doesn't develop this condition.  He needs to be rechecked every 3 months.

Like I stated above, please keep my baby and our family in your prayers.  My Little Man has been to so many doctor visits and he is only 9 months old.  I'm thankful for the medical system and provisions for my son's issues. In addtion, I'm thankful for help and answers.  Thank you Lord for answers, May you keep Little Man in your hands and continue to protect him.


Here's Little Peanut... She is now 2.5 and doing wonderfully! Great personality, great humor, and always very curious!  She has her moments and sometimes I lose my patience with her. But overall, she is a joy and pleasure to be with. I love my Peanut, that is for sure!!!  She brings me joy in my heart!!!



Monday, July 16, 2012

Much needed update on our Little Man...

Little Man is growing in leaps and bounds.  He can do so many things these days.  He can crawl on all fours, stand up with furniture, walk with mommy's assistance, babble like no tomorrow, and loves to put everything in his mouth!  



Little Man has been doing fairly well lately regarding his "episodes."  We thought he was over them, maybe he just outgrew whatever was causing them.  So that was a relief to us these past few weeks.  On the other hand, Little Man cannot tolerate solid foods.  We have tried multiple different foods and he just screams and then cannot have a bowel movement for days without assistace.  We took him to doctors and no answers.  We are currently waiting to see a GI specialist.  The earliest we can be seen by a GI doctor is August 20.  We tried all over WI and this is the earliest.  We switched his doctor and now he sees a pediatrician with Marshfield Clinic.  This doctor changed his acid reflux meds (this ahs helped) and scheduled various appointments and tests.  And one of those appointments was today.  We saw an allergist to determine if little man is allergic to the foods we have tried to give him.  After getting the results back from the test today, I was in shock.  May I saw, overwhelmed!  He is not allergic to the foods we have tried, however; we finally, after 8.5 months, received some answers today.  SuperDaddy and I are thrilled to finally have an answer to his episodes.  But this answer does not come easy by any means.  Our Little Man is allergic to our cats, Tinkerbell and Kit Kat.  We also found out that his "episodes" were asthmatic attacks as a result of the allergy to them.  This means we have to find new homes for our cats.  We also have to wash down all the walls and ceilings.  Preferably replace the carpets and furniture. We are also to buy a HEPA filtre to help get rid of the allergens.  Apparently reactions are worse in the winter months and that is why he has been "episode free" these past few weeks.  The doctor wants us to have the house and everything changed over and cleaned before the winter months because of the risks involved.  He now has an inhaler in the event he would have another asthmatic attack.  He aslo has an allergy medicine as needed if he will be exposed to cats or dogs.

Please continue to pray for our Little Man...

  • Pray that we get answers from the GI doctor why he cannot tolerate solid foods.
  • Please pray we find new homes for our cats.
  • Pray for our family as we grieve losing our cats. 
  • Praise the Lord we have found an answer to his episodes and a cure!!!
  • Pray that we can get the house cleaned and changed over in a timely manner so that our little man can feel better as soon as possible.


Kit Kat is our four year old Cat. She is female, spade, and is declawed in the front.  She loves people and does very well with kids.  If you are interested in taking her, please contact me. 


Tinkerbell is our ten year old Cat. She is also female, spade, and is declawed in the front.  Tink is wonderful after she gets use to you. Sometimes she is a bit on the territorial side.  She would do well in a home with one/two people.  Please contact us if you are interested in taking her.


Monday, May 21, 2012

Please Pray for my Little Peaunt

As well as praying for Little Man, could we ask for prayers for our Little Peanut.  Little Peanut has been potty trained since 22 months old.  She is now 27 months old.  We have noticed that she "pees" incorrectly and this apparently needs to be fixed. She pees up and out of the toilet instead of down and into it. She is having "minor" surgery on Friday May 25 with sedation to fix this.  Yes, you read that correctly, not just one, but both of my babies will be sedated two days apart.  Yes, I'm anxious, trying not to freak out inside.  Please pray for SuperDaddy and I as we go through this week's appointments, trusting our little ones to Him.  Please pray Little Peanut's surgery goes well and she doesn't react negatively to the anesthetic.

some cute pics of Little Peanut...




Little Man's 6 month update...

Please continue to pray for our little man.  First the praises!

  • Praise:  Days have gotten much easier as he loves, absolutely loves to crawl around the house.  So there is a lot less crying during the day.  He is still having "episodes" during his sleep.  They wake him up and he screams. Therefore, I still hold him at night and nurse him often, as it is the only way to calm him down after an episode.  
  • Praise: At 5 months old we switched doctors and he was put on zantac and probiotic for acid reflux.  HE IS SO MUCH BETTER!  We still have our days where crying is heard a lot but we have finally hit a point where I can get some things down around here. 
  • Praise: Today, my wonderful mother in law came over to help juggle him and cleaning.  My entire first floor is clean!!  I'm so excited, I pray it stays this way for a while so I can enjoy a clean home ;)  


Prayer Requests:

  • We attempted to feed him solids, and it didn't go very well.  First we tried avocados, he was constipated and needed multiple suppositories.  We waited a couple of  weeks and tried rice (thinking it might be easier to digest) he screamed for a couple hours that night) So then we tried prunes (my thinking, well this can't constipate him) That night was by far the worst night I have experienced being a mother.  My little man literally screamed, arms and hands flaying, from 11pm until 3am.  I was getting hurt by him as he was kicking and hitting me and I had to put him down.  If I laid him in the crib, he just would hurt himself more.  I ended up buckling him in his car seat and had to helplessly watch him scream until he finally stopped 4 hours later.  So needless to say, I'm terrified to try solids again.  We spoke with his doctor and she said to wait a few months and try again.  So yes, my 6.5 month old is still strictly breastfed.  Please pray that my milk supply stays adequate for his necessary development. Right now is a developing very well and no need for concern.  He is my big little man!
  • His 6 month MRI is scheduled for Wednesday may 23.  We arrive at the hospital at 8:15, the MRI is at 10:00.  This MRI is going to confirm or deny if he has sturge weber syndrome. Little man will need to be sedated for this procedure.  As a result, he will not be able to eat for at least five hours before the MRI. Please pray that we get through this time well.  Also please pray that he does not have sturge weber.   Regardless if he does or not pray that we continue to  find rest in God's almighty hands and trust him with our son's future. 
  • He has had 2 laser treatments.  He is responded fairly well.  We still have many more ahead of us.  His next scheduled laser treatment is on June 6.  Please pray he does very well so that  his nine month treatment can be done in clinic without sedation.  The more we can do when he is little the better as it doesn't involve sedation.  And because of these summer treatments, he cannot be in the sun AT ALL.  Please pray that he doesn't get sun exposure as this is very hard to do all the time.  
Enjoy some little Man pics....


















Monday, March 19, 2012

Little Man's update...




So for those of you who do not know.  We were in Marshfield for the past four days at St. Joseph's hospital with our little man.  He was there for observation and put on a video EEG to confirm or deny that his episdoes are seizures or not.  None of us were prepared for this hospital stay. His doctor said it would be overnight, well it wasn't.  The hardest part of the whole thing was being away from my daughter and having my little man hooked up to all the wires.  It made him look like he was in there because he was sick.  But I am very thankful for the news that his episodes are NOT seizures.  They are just normal things that happen I guess.  At least that is what they decided it was.  So we are very thankful for this news and are praising the Lord for getting us through this weekend apart as a family.  Our little man sure was cute and the child life specialist even found him his favorite toy- a supersaucer....




Our little man doesn't really like sleeping in a crib, especially hospital cribs; the nurse found him this...


But even though it was a cool gadget and it even glided back and forth automatically, the little man would not sleep for us.  We needed him to sleep so that we could capture an episode as they only happen in his sleep.  The first night I was by myself with him and neither one of us got much sleep.  Then to wake up and hear you are staying all weekend was not fun to say the least.  So Grandma brought him his rocker bed that he absolutely loves and he started sleeping very well for us.  SuperDaddy stayed with us the rest of the weekend.  Grandma and our Favorite Babysitter took care of Little Peanut for us!  We can't thank them enough!! 
So on saturday he had two episodes and on sunday the doctors said he was ok and they are NOT seizures.  What a relief!!!  They still wanted us to stay another night, but SuperDaddy and I said we were going home.  So we came home sunday afternoon.  So very thankful for a cordless baby!!!


We were thrilled to be back home to enjoy the beautiful weather as a family!!!
Thank you Lord for the great news of NO SEIZURES!  

His eye exam last month came back great, no glaucoma yet.  He still needs to be checked every 3 months as it could still develop.  

He will be having his MRI between 6-9 months old to find out if he has sturge weber syndrome

His next laser treatment for his Port Wine Stain will be April 4.

Please continue to pray for our little man.  We thank you for your prayers and support.  

A few more pics of the weekend...




Saturday, February 18, 2012

Sorry so late...Little Man's update...

Sorry, life is a crazy busy roller coaster these days, so I am now just getting to Little man's update on how his appointment went last Wednesday.  It was a long exhausting day but we survived it, I'm sure it will get easier as we make the trip every 8 weeks for many many months ahead of us.  We left home around 5 am and just made it to his appointment at 9am (I even had some minutes to grab a muffin before his appointment) 

Here are some cute faces of Little Man as we were waiting...







Well, it seemed like forever that we waited in the exam room before his procedure, but after 2 hours we were all ready.  Thankfully his procedure didn't take long and daddy actually was able to hold him during it.  His laser treatment doesn't hurt too much the doctors say.  It feels like a flick of the finger, then for a couple days it feels like a very minor sunburn.  He doesn't seem to mind it at all. He sleeps on it and doesn't act like he is in pain.  This is  very comforting because even hearing his cry during the procedure made me want to cry myself.  During his procedure I stayed out of the room, knelt, and prayed.  I prayed I could comfort him as I was unable to comfort him after his circumcision.  He sometimes struggles with nursing (especially after he has a bottle, which he did that morning in the car)  He refused to nurse before his treatment.  So I was praying that he would find success in nursing and that it would comfort him.  Well, his procedure lasted no longer than 2 minutes, yes just 2 minutes.  Then the doctor gave me my little man and he successfully nursed and was comforted!! YES, a HUGE answer to prayer.  It all went very well, and he is healing up nicely.  He looked like he had polka dots on his face.  In order to treat everything on his head, next time we will have to give our little man his first hair cut.  I'm thinking this will be fun :) 

Here is a pic of what he looks like after treatment.  They say the more bruising, the better.  As of today, a lot of them are healed up already. 



Please continue to keep Little Man in your prayers...

1.)  That he responds well to the laser treatment and will need fewer treatments than more. 

2.) He passes his eye test for glaucoma on Feb 29.

3.) That he doesn't have Sturge Weber Syndrome.  ( We will find out when we do the MRI at 6 months old)

4.) That his "episodes" will not be confirmed as seizures or anything else alarming.  He has had a few more, but it seems like it may be more of a breathing issue than a seizure.

Thank you for your prayers and support and caring for our Little Man!!

Tuesday, February 7, 2012

Praising The LORD!

Today some decisions were made...an appointment was canceled...an appointment was made!!  After our crazy week last week, I have been very emotionally exhausted and ready for a break from all of this choas!  Many things lie ahead but as of today some decisions are in the past!!  This may not be much but for me, it is!  We canceled Little man's MRI as two of his doctor's wanted to wait until six months of age.  (so we will keep everyone posted as to when that will be and what the results will be) This is so exciting for me because after last week, the last thing I wanted was to hear my baby scream in hunger for 7+ hours, be hooked up to an IV, be sedated, and taken from me for it.  I'm glad to say we had a very pleasing FAMILY day today as SuperDaddy took today off for the scheduled MRI that we didn't have to go to! I'm refreshed to say the least, in love with SuperDaddy, and love being Little Peanut's and Little Man's mommy.  Thank you Jesus for all you've given me!!

And for more exciting news...We got the approval letter from the Health Insurance to start treatment for Little Man's port wine stain!  And his appoinment will be next wednesday Feb 15 at 9am.  Yes, that means we have to leave Wausau no later than 5 am!!!! YIKES!!! But I'll do just about anything for my little man!

Thank you for all your prayers and support.  We lift our Little Man up to the Lord and pray his episodes are not seizures.  His neurologist is "waiting" for more to happen before admitting him to the hospital to run a longer EEG.  We pray that they stop and that we will not be admitted.  He hasn't had one since saturday night.  Please continue to pray for him.


And here's a cute picture of Peanut...




 

Thursday, February 2, 2012

Please be in prayer for our Little Man...

So much choas....I don't know how to start...sorry if this is hard to follow...

For those of you who do not know, our Little Man was born with a capillary malformation (aka Port Wine Stain-PWS) on the right side of his ear, face, neck, and head. 



Some may just think it is simply a birthmark, as we first did.  Apparently it's not.  This is not a very common thing as it only occurs in .3% of births worldwide.  Having this puts him at risk for having Sturge Weber Syndrome.  Sturge-Weber Syndrome  is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities.  Children with this Syndrome suffer from glaucoma, seizures, behavioral issues, learning disabilities, and muscle weakness on opposite side of PWS.  There is no treatment or cure for Sturge Weber Syndrome and no known cause.  During development in the first few days of conception something "mis-fires" and apparently this happens.  Our Little Man has not been confirmed on having this syndrome yet.  To confirm this an MRI/MRA is performed.  During this test, one must be sedated which poses risks to the baby. Therefore, his MRI will be done in Marshfield. There is currently a debate going on with his doctors as to when the test will be done.  We have been on a whirl wind roller coaster of an emotional ride regarding our dearest Little Man in the last few weeks regarding this test and treatment of the PWS. 

Yesterday we went to Milwaukee Children's Hospital to get a second opinion and answers questions on why and when we would get treatment for the PWS.  God is amazing how he works.  Just a little over 2 weeks ago, we had no clue what all of this was even about.  I was at Moms and More at church.  One of the ladies there saw our Little Man's PWS and asked, "is that a port wine stain?"  I was in complete shock, not many people know what he has.  I said yes and she continued to tell me that a friend of hers has a baby a little older than mine with the same thing!  Then a few days later, the mother of the other PWS baby calls me!!  This lady who was a complete stranger but dear sister in the Lord opened our eyes to the possibility of treating our son and finding out more information by seeing a wonderful specialist down at the Children's Hospital in Milwaukee.  I'm incredibly thankful for this woman contacting me and I praise the Lord he has opened these doors for us. 

We had many questions, many questions were answered, and some questions remain...

He had an eye test done at one week old and the findings were normal-no signs of glaucoma.  He has another eye test at the end of February to check again because glaucoma can start at anytime.  He has a better chance of not having it since he passed his first test.  Please pray he passes his second test. 

He also had a hearing test done to make sure it isn't affecting that as well.  He passed but hearing loss could develop overtime so he will possibly need that re-checked in the future.  But we praise the Lord that our Little Man can hear us today!

The PWS on the head, neck, and face is treatable with Laser Surgery. The ear doesn't respond well. The reason we are considering treating it is because when he is older it will grow, swell, and have blood pockets that form on the PWS.  The blood pockets do break open and get infected.  When this occurs many patients are put on antibiotics to get rid of the infections.  This can happen over and over again until laser treatment is done.  So to save him the struggles, pain, and suffering; it will be much easier treating him as an infant than making him get it done when he is older.  The treatments are done every 8 weeks and he will need anywhere from 5-12 treatments. (all done at the Milwaukee Children's Hospital) They can start treatment as soon as insurance pre-authorizes the treatment.  We are currently waiting for an approval letter in the mail.  It should be here in a week or two.  Please pray insurance approves us. 

Ok, now on to the scary stuff.... Our Little Man has been having a few "episodes" or "spells" it what the doctors call them.  He has had 6 of them in the last 2 weeks.  When he is sleeping, he starts breathing weird...fast, shallow, and high-pitched; his head, eyes, and eyebrows start to tremor/shake (if eyes open they roll in the back of his head) then the weird breathing happens again.  These could be relatively normal baby stuff but it concerns the doctors and terrifies me.  I called his pediatrician today and she had me bring him into the clinic almost immediately, then sent me Marshfield for an EEG.  Thankfully the EEG came back normal.  However, he did not have one of his "episodes" during the test. So this is where the debate about when the MRI should be done comes in.  One doctor says it needs to be done NOW.  The neurologist and Milwaukee specialist usually waits until 6 months old to do the test.  However, because of these episodes, we are not sure when we should have it done.  The risk of testing to early means that he could still have Sturge Weber Syndrome but it won't show on the MRI until he is older.  Essentially they are looking for PWS on the brain, but in most cases it takes time for it to show.  So if we test him now, and it comes back that he doesn't have Sturge Weber than they will test again at 6 months.  If it confirms Sturge Weber, then we have our answer but doesn't change much of anything. This is because there is no cure for Sturge Weber.  They can just treat the consequences of the syndrome.  So do we sedate our little 3 month; which involves not eating for at least 7 hours, and IV, and him being put to sleep or do we wait until 6 months?  Please pray we can make a informed decision alongside his doctors and do the very best we can for our little man. 

I'm currently debating on getting a monitor for Little Man's crib to help ease the scariness of the "possible seizure" situation.  So if anyone has experience and would reccomend it, please let me know.  I was considering getting the AngelCare Video, sound, and Motion monitor.

Sorry it took so long to get the update online, thank you for your patience, prayers, and support.