So for those of you who do not know. We were in Marshfield for the past four days at St. Joseph's hospital with our little man. He was there for observation and put on a video EEG to confirm or deny that his episdoes are seizures or not. None of us were prepared for this hospital stay. His doctor said it would be overnight, well it wasn't. The hardest part of the whole thing was being away from my daughter and having my little man hooked up to all the wires. It made him look like he was in there because he was sick. But I am very thankful for the news that his episodes are NOT seizures. They are just normal things that happen I guess. At least that is what they decided it was. So we are very thankful for this news and are praising the Lord for getting us through this weekend apart as a family. Our little man sure was cute and the child life specialist even found him his favorite toy- a supersaucer....
Our little man doesn't really like sleeping in a crib, especially hospital cribs; the nurse found him this...
But even though it was a cool gadget and it even glided back and forth automatically, the little man would not sleep for us. We needed him to sleep so that we could capture an episode as they only happen in his sleep. The first night I was by myself with him and neither one of us got much sleep. Then to wake up and hear you are staying all weekend was not fun to say the least. So Grandma brought him his rocker bed that he absolutely loves and he started sleeping very well for us. SuperDaddy stayed with us the rest of the weekend. Grandma and our Favorite Babysitter took care of Little Peanut for us! We can't thank them enough!!
So on saturday he had two episodes and on sunday the doctors said he was ok and they are NOT seizures. What a relief!!! They still wanted us to stay another night, but SuperDaddy and I said we were going home. So we came home sunday afternoon. So very thankful for a cordless baby!!!
We were thrilled to be back home to enjoy the beautiful weather as a family!!!
Thank you Lord for the great news of NO SEIZURES!
His eye exam last month came back great, no glaucoma yet. He still needs to be checked every 3 months as it could still develop.
He will be having his MRI between 6-9 months old to find out if he has sturge weber syndrome
His next laser treatment for his Port Wine Stain will be April 4.
Please continue to pray for our little man. We thank you for your prayers and support.
A few more pics of the weekend...
