After many more test results, second opinions, and seeing a dietitian in Marshfield; two weeks ago, we decided to try Little Man on a normal food diet with pedia sure as a supplement. Yes, we returned him to gluten, eggs, and milk. Slowly over the last 2.5 weeks, we introduced things back into his diet. It was such a hard decision to make as we saw gluten hurt my little guy so much. I didn't want to willingly bring him pain. But, his weight was getting so low. At this point, he was now smaller than he was at 8 months old. The doctors and dietitian agreed that he wasn't getting enough calories to grow or maintain his weight causing him to have failure to thrive. It was all we had left to try here locally. The current theory is that his stomach was immature and couldn't digest the gluten when he was younger. It wasn't a fantasy that my son got so sick from gluten. His grandparents can attest that our little man was very sick from it. We all hesitated giving it to him. Now, after two weeks of eating real food, he is doing wonderful. He is not in any pain from it. He sleeps great! He plays continuously. He loves his Thomas the train. He runs around the house after his big sister, laughing. He has learned new words and letter sounds. He responds better when talking with him or giving him a directive. He loves to annoy his big sister. The scratching all over is down to a minimum. He loves eating crackers and bread. He loves drinking regular cow's milk. And most importantly, the clothes he has been wearing since last July are finally starting to get too small!!!! He even grew out of his infant carrier seat!!! He is now in a convertible seat!! Yippee!!! He hasn't been weighed yet to officially know if this "normal diet" is working, but I have a good feeling about it. April 1 is his next weigh in at the ped's office. Please pray that he has gained his weight back and maintains it! This normal diet is only a trial run until we see enough progress to keep him on it. We are praising the Lord for answering our prayers. God can only receive credit for Little Man's progress. Not the test results, doctors, or lack of information provided from the specialist. God is healing our Little Man! If he celiac or not: we do not care at this point. What we care about is that our boy is doing better. We are in no way out of the red zone yet. Please continue to pray that he continues to eat, respond well, and GROW!!! If he goes downhill again or continues to not gain weight, they will do a biopsy to confirm if he has celiac or not. In order for the biopsy to be positive, Little man has to eat gluten for 3-4 months before preforming the biopsy. If he grows and continues to do well, we will not have to do the biopsy. Meaning this trial normal diet indicates celiac is negative. Please continue to share his story and pray for him. I know this current answer sounds so off the wall. We as a family, could get so angry at the first doctor for even suggesting celiac, but we choose not to. We could be so angry for how much money we have spent on gluten free living. But we are not. We have chosen to be thankful for help and finding a doctor that truly cares and wants to see him get better. We are thankful that we can buy normal food, practically giving ourselves a raise because of the cost difference in food. We choose Joy that we have gone through many trials to grow us closer to our Lord and Savior and each other. Someone once said, "when life gives you lemons, make lemonade with them." That's what we have chosen to do.
P.S. Please pray for April 9 for our Family. It is confidential but we hope to be able to share with everyone very soon. April 9 is a very special date. Please pray for all the details to go smoothly and that the person with the authority to make a change chooses to. Thank you so much for your prayers.